Nienke talks about the bloody mucus she coughs up before Harley’s hospitalization in the children’s intensive care unit in the AMC. The doctor refers them to the hospital, where, after an emergency ride in the ambulance, they make a shocking discovery: she has a congenital heart defect and must undergo emergency surgery. “It was really a bit of an edge,” says Nienke. “This really is every parent’s nightmare.”
“It looks like we’re in a bad movie,” Resley adds. “You get pulled into a room by doctors and then you’re told it could end badly. That it’s serious. You go from one hospital to another.”
The first operation is over and went well. She is stable and is now off the ventilator. Now she has to gain strength to be able to get off the IC and to be able to reduce the medication. When Harley is older, she will have to go under the knife again. “We remain positive,” said Nienke, who says she is in “survival mode”. “She’s a strong girl. If she has the fighting power of her mom and dad, she’s now dreaming about the future how she smiles at the world with her patched heart.”
Nienke also shows in the vlog how Harley is, on all kinds of cables and devices. “Looks like Google’s server is connected to d’r.” She also describes what a ‘jaap’ she has in her ‘little body’. The parents are also deeply touched by the other children who are in the ICU.
You can watch Nienke’s full vlog below. Followers say they have watched the images in tears. “All respect that you also share this”, it sounds, among other things.
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