New health policies
Big Data in healthcare has the potential to guide health policies, direct investments in research and development and influence the lives of individuals and the entire population, as well as generate an important economic return. The publication is based on this assumption “The data. The future of healthcare. Tools for real innovation”, created by the Roche Foundation in collaboration with Edra SpA, which collects the contributions of 39 experts on the subject and researchers with the aim of analyzing the problems and potential of data for research and service optimization purposes, for the benefit of citizens, the National Health Service and businesses.
Innovation in the Health System is also based on a greater valorisation of health data, made possible by digital health which, in turn, is based on the interoperability of systems, allowing the sharing of data processed in clinical research, collected in clinical practice or kept in public or private registers.
From the volume – edited by Francesco FrattiniSecretary General of the Roche Foundation, e Fausto MassiminoDirector General of the Roche Foundation – the need to combine privacy, ethics and medical-scientific research clearly emerges and how, thanks to data, people’s quality of life can be significantly improved, by virtue of political decisions capable of reconciling individual rights and innovation.
The wealth of health data theoretically available to the country is currently underutilized, both due to differences in management at the territorial level and of individual structures, and to conservative approaches by public and private subjects. In fact, national and European laws for the protection of personal data are sometimes interpreted in a restrictive sense, also in relation to possible lawful and non-invasive uses of information, which could generate a benefit for individuals and the community.
Finally, the role of Europe is significant, after the EU Commission started the creation of a common area dedicated to health data. The sharing and interchange of data between all Member States is a need that cannot be postponed, as emerged during the Covid-19 pandemic. In this context, the authorities, healthcare bodies and companies operating in Italy must seize the opportunities that present themselves, including in the field of scientific healthcare research, avoiding bureaucratic drift and interpreting the legislation with criteria of reasonableness and on the basis of priority shared. This is in fact a sector of strategic importance for the development of the country, but above all for the protection of the fundamental right to health (Article 32 of the Constitution), and Italy cannot therefore afford a rearguard management compared to other countries Europeans.
The event, which was held in Rome at the Temple of Hadrian and was moderated by the journalist Barbara Carfagna, opened with the intervention of Mariapia GaravagliaPresident of the Roche Foundation, to continue with two round tables.
The first, for comparison and analysis of the Italian context and related critical issues and opportunities, was attended by: Walter RicciardiProfessor of Hygiene and Public Health at the Catholic University of the Sacred Heart of Rome and Chair of the Mission Board for Cancer, European Commission; Gianmario VeronaPresident of Human Technopole, Professor of Management at Bocconi University; Paolo MarchettiScientific Director of the Personalized Medicine Foundation (FMP); Andrea Mandelli, President FOFI; Sen. Antonio NicitaNational Secretary, Head of Institutions, Technologies and National Reform and Resilience Plan of the PD, Full Professor of Economic Policy at LUMSA University; Maurice de CiccoPresident and Chief Executive Officer of Roche Italia.
The second round table, focused on the responses that the white paper has provided on the subject of data in healthcare, saw the intervention of: Luke PaniFull Professor of Pharmacology and Clinical Pharmacology University of Modena and Reggio Emilia and of Clinical Psychiatry University of Miami, FL, USA; Alfonso FuggettaCEFRIEL Scientific Director; Charles Stagnaro, Research and Studies Director of the Bruno Leoni Institute; Sen. Beatrice LorenzinVice President of the PD Group and Member of the Budget Commission; Guido Scorza, Member of the Data Protection Guarantor. AIFA President, George Paluhe concluded with a speech on the agenda for the future.
“The sharing of protocols, the opportunity to make data interoperable, having coherent structures and tools that allow us to integrate. We see it between the Regions, in hospitals, between the public and private sectors. All of this represents an absolutely priority aspect if we want to face this last mile – he commented Gianmario Verona, President of Human Technopole, Professor of Management at Bocconi University – The theme of the National Health File is, for example, an extremely important aspect that we must implement and finalize in the shortest possible time. It is important that Italy plays a priority role in this historical moment”.
“Extracting value from data is not a trivial or ‘automatic’ operation: method, organization, vision and skills are needed – he declared Alfonso FuggettaScientific Director of CEFRIEL – It is a strategic investment that requires awareness and commitment, starting above all from management”.
“Health data represent a powerful weapon to bridge the differences between the Regions and guarantee fair treatment opportunities for citizens – he concluded Mariapia Garavaglia, President of the Roche Foundation – and digitization must therefore be a leading theme when thinking in terms of planning social and health interventions. The coming months will see major changes and possible investments in the country system, and with this publication the Roche Foundation wanted to make a contribution with the intention of opening a debate on the footprint of data in healthcare and on how healthcare digitization can really introduce value in the Health System, guaranteeing fairness, equality and universalism, because digital solutions represent one of the keys to achieving new balances”.
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